Wednesday, March 18, 2009

Thanks for caring!

I had lunch Monday with a friend who also has a child with a disability. Her road is even harder than mine because her daughter is physically dependent. My friend is in the same dark hole I was last year and still feeling the residual effects of, this year. She looked at me with such despair and asked "is this all there is?"
And I will say this. For the most part, society, including family and friends turn their head from us and walk away, probably saying to themselves "sure glad that's not me." If we say anything, we are looked at as whining. So we walk alone. I am going over to her house to learn how to care for her daughter so we can take her girls so she and her husband can have a weekend away together. Something they haven't had in years. How bad is it that only families with their own challenges are helping the others?
That is what I struggle with these days. After battling so hard for so many years at the walls of society on so many fronts, I often want to just crawl in a hole and die. It is hard to generate enthusiasm for anything.